parent training

Yesterday (Saturday) was a long, busy day of parent/nurse training here at UNC. So busy in fact that we didn't even have time to go see Carolina's first game victory of the season (GO HEELS!!! what a great start to the season!) .

We got to mix all his thickened bottle feeds yesterday, as well as getting to actually feed him. Friday he did very well and took all his bottles without need of the NG tube. All the excitement must have worn him out because he was only able to take about half of each bottle and had to be fed the rest through NG tube. Speaking of the NG tube, I (Julie) got trained on placing the NG tube down his throat so that I'll know how to do it when we get home in case he still needs it. Today, it's Dan's turn to learn how to place the tube. Ethan also was put back on a little oxygen on Saturday, not because his pulse ox was lower, but just because the doctors wanted him to have it for one more day. Also, we learned yesterday that Ethan has a little reflux so he's on one more medication - Prevacid - that he'll have to have once a day.

Also, with tomorrow being a holiday, it looks like we may not get out of here until closer to Tuesday now instead of today or tomorrow. But that's ok, because we'd rather be here where he can be watched closely one more day by the hospital staff, than to be home on a holiday when not many places are open.

Thanks for continuing to keep us in your prayers, the light at the end of the tunnel is getting brighter each day. Not long now until we're all back home where we belong!