Well we're still trying to figure out Ethan's oxygen saturations. He still sats in the 60s when he's asleep so he has to be on a higher oxygen concentration, but then when he's awake (and especially when he's eating) his sats are in the upper 70s to low 80s so the nurses have to turn the oxygen back down to almost nothing. A big oxygen tank and a portable oxygen tank have been ordered for us to use whenever we go home, if he's still needing it by then. If we do have to go home with oxygen, he'll have to be on it 24hrs/day. The doctors don't usually send HLHS babies who've had the Norwood (first surgery) home on oxygen but since this is really his biggest issue, they're considering doing it since he's on so little oxygen most of the time (.1-.4 ml/hr).
So as stated in yesterday's blog, oxygen sats are the biggest prayer request at this time. As much as we still long to be home as a family, we are waiting on God's timing to make sure that Ethan's body is strong enough and getting enough oxygen before we go home. Becoming a new parent is challenging enough without the added tasks of all the medical equipment we'll be taking home - pulse oximiter (to measure oxygne sats), NG feeding tube and pump (to supplement his feeds if he can't take his whole 2oz. (60-65cc) bottle, and now an oxygen tank.
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2 comments:
I'm so glad to hear that they are still talking about home, even with his 02 issues. Hopefully Ethan will be totally weaned of oxygen by then, getting off 02 usually happens quickly once he's ready. If he's not ready, you'll be able to handle the oxygen tanks. :) I'm sure of it! I totally know how overwhelming you must feel right now. Hang in there! We are praying for you all! We miss seeing you and we hope you are all home soon!
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