Sunday, March 23, 2008

Happy Easter!

Happy Easter everyone! We hope you all have had a nice day and hopefully got to spend some quality time as a family on this joyous holiday as we remember how Jesus gave His life on a cross so we may have life with Him eternally in Heaven one day.

Each day of our journey with Ethan has made us realize more and more just how precious life is, and how we should not take any day for granted because we never know when it will be our last. We had the privilege of going down to the coast this weekend to celebrate the life and First Birthday of another little girl with Ethan's same heart condition of HLHS. It's hard to believe that "baby Shelby" is now a year old. She was the second case of HLHS that we had ever encountered, and the first girl we'd met with this condition.

We've had the pleasure to get to see this family on several occasions throughout the past year and Shelby's mom is the one who is trying to help establish a family support group for pediatric heart families at UNC and possibly other hospitals in North Carolina (although the other hospitals already have their own system in place). What a joy and encouragement to see this little girl come as far as she has, especially with her parents not having the knowledge of her heart condition prior to her birth. And since finding her, we also feel privileged to keep finding more and more families with HLHS babies as well, even though none of them live in state like Shelby.

Thank you everyone for your continued prayers and support of our family, as always. Time to go put my sleeping baby, husband, and dog to bed since they're all snoozing on the couch together as I type!

2 comments:

Patience Leino said...

Happy Easter, Miles family! We've been thinking of you today & rejoice as you share this first Easter with sweet Ethan. Much love coming at your from the Leinos.

Jesus is Risen!!!!

Anonymous said...

Happy Easter! Thank you all so much for coming down for Shelby's birthday. I can't wait for the many more we will share together!