Well we've made it 26 hours and we're still here in CICC! I (Julie) talked with Ethan's doc this morning and she said he did well overnight and that we are probably looking at going home in less than a week, as long as we have no other setbacks! Since home is where we desperately long to be once Ethan's doing really well, please be in prayer that everything continues to go smoothly so we can be on our way soon.
In order to be headed home, we finally have been given the goals to work towards to clue us in as to how close we are to leaving here. First, Ethan needs to be completely weaned off of his oxygen (which he's close to right now). Second, he needs to start gaining weight and continue to have a good pulse ox (oxygen saturation level) once he gets off the oxygen. Third, he needs to still work on his feeds and we have to learn how to put in and take out his NG tube (this has to be changed weekly or whenever he may happen to pull it out). Fourth, we have to learn how to fill the NG tube with his supplemental feeds. Fifth, we need to learn about his oral medications - the correct dosage and how often to give it to him. Once we get all these things nailed down, then we should be able to leave!
In the meantime, we're just having a fun time hanging out with him and finally getting to hold him and play with him. We are including some short video footage as promised in yesterday's blog. Enjoy!
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6 comments:
What great faces! I look the same way when I just woke up. :)
Thanks for the video! I love his expression of "Dad! Leave me alone, I'm sleeping!!" I'm so glad things are continuing to go well! We can't wait till you all home!
He looks so good! I hope my reply helped you yesterday. Let me know if you get the help you needed.
He is so precious! Thanks for the video. So cute!
Hey Dan and Julie, it is so wonderful to see everything going well. I am sure the hospital is taking good care of you but I wondered if you are going to have any home nursing care once Ethan is home? Have you applied for the Ill and Handicapped Waiver which allows you to get goverment aid? Please do so now if you haven't because ours has taken a year on the waiting list and we still are waiting. This is a state funded program but you should have the equivalent in NC. Also, ask about therapy at your home. We have another state agency called the Area Education Association. They employe speech, occupational, and physical therapist who come to our home or Lily's school for therapy. This is free through the state and these therapist are wonderful. Once she turn 3 years old she will be eligible for preschool through them also at no cost. This is different and separtate from the Waiver program. please give me a call with any questions (563-271-7377) as we continue to pray for you and your family. with love, Amber
omigoodness, i cant believe how cute he is! (his expressions and his stretching & his lil face and hands... he's just so cute) i cant wait to hold him and kiss him!
-aunt jenny
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